Well, the time has come. My Oncologist says that I am in a dangerous phase, a euphemism for ‘final stage’. He says I have just 4 – 8 months to live and that he doesn’t recommend me going onto chemo as he thinks I am so weak that the side effects will outweigh the benefits, if any. He says the chance of chemo working is just one digit. He says there is the Adams trial so I will find out more about it. He has given me steroids to make me stronger and will see me in a week and will talk about chemo then. This has been a big shock to us as my last appointment said I was pretty stable, now he says it is growing aggressively and has penetrated my abdomen too.
Not much else to say other than I am allergic to quinine and have a horrendously itchy allergy rash, which I could do without at the moment.
I am sorry for the bad news, but although we knew it was just a matter of time, it still comes as a shock.
Wednesday, 27 July 2011
Sunday, 10 July 2011
Race for life 2011
Today I completed the Cancer Research Race for life. I was in a team of eleven lovely ladies and one dog, Mabel, we have so far raised two thousand pounds and still counting. If you were considering sponsoring us here is the link www.raceforlifesponsorme.org/theperfectfriends.
I walked about three quarters of the race but had to resort to the wheelchair for three hilly bits, where my daughter Emily, Georgie, Anne and Amy took turns in pushing. We finished in about an hour and a quarter and all crossed the finish in a solid line, arms linked, to cheers and claps from the wonderful spectators.
I was dreading this race as the date got nearer as my breathing has deteriorated somewhat in the last few weeks, so it was a great relief to be able to finish; and we were NOT last over the line.
We had a good holiday in Devon last week and were able to meet up with the wonderful Debbie Brewer, who came up by train all the way from Plymouth. It was so lovely to meet up and chat, plus Debbie took lots of photos. We all went to lunch in the famed River Cottage food canteen. It was very rustic, boarding on scruffy, and the food was just OK. All the hype about it on TV lead us to expect great things, and we had to queue to eat there!
I have had my CT scan moved forward to next week, due to decreased breathing problems, and I will see my Oncologist two weeks later. I hope the cancer has not got suddenly hyperactive.
Today’s picture is of the whole ‘Perfect Friends’ race for life team, taken today, just before we crossed the finish line. Thank you ladies for entering the race with me, and for supporting me all the way around the course.
(Picture courtesy of Chris White)
I walked about three quarters of the race but had to resort to the wheelchair for three hilly bits, where my daughter Emily, Georgie, Anne and Amy took turns in pushing. We finished in about an hour and a quarter and all crossed the finish in a solid line, arms linked, to cheers and claps from the wonderful spectators.
I was dreading this race as the date got nearer as my breathing has deteriorated somewhat in the last few weeks, so it was a great relief to be able to finish; and we were NOT last over the line.
We had a good holiday in Devon last week and were able to meet up with the wonderful Debbie Brewer, who came up by train all the way from Plymouth. It was so lovely to meet up and chat, plus Debbie took lots of photos. We all went to lunch in the famed River Cottage food canteen. It was very rustic, boarding on scruffy, and the food was just OK. All the hype about it on TV lead us to expect great things, and we had to queue to eat there!
I have had my CT scan moved forward to next week, due to decreased breathing problems, and I will see my Oncologist two weeks later. I hope the cancer has not got suddenly hyperactive.
Today’s picture is of the whole ‘Perfect Friends’ race for life team, taken today, just before we crossed the finish line. Thank you ladies for entering the race with me, and for supporting me all the way around the course.
(Picture courtesy of Chris White)
Tuesday, 28 June 2011
June 2011 appointments
Things have been quieter for me for a bit now. I have seen my Radiologist, Tim Sevitt, who is happy with the treatment he gave me. The lumps in my back seem harder but he says he thinks it is scaring; hmm, not so sure. Also the lump in my side is about the same size so he says he will leave my appointment open for my Oncologist to sort out.
My blood test have not changed much, my eGFR is still 19, and will probably not recover any more than that as it has now been six months at this level. This means I cannot enter any drug trials. I just hope some trials are successful and I can get treatment once they are proved, if I live that long.
I have the Race for Life in two weeks and not really looking forward to it as my breathing has got worse. Still we are taking a wheelchair just in case I get into difficulties and the girls have said they are happy to push me if necessary. We are having a short break first so I will be as fit as possible for the race. If you are thinking of sponsoring us in the race here is the link:- http://www.raceforlifesponsorme.org/theperfectfriends. (Just copy and paste into your browser.)
My blood test have not changed much, my eGFR is still 19, and will probably not recover any more than that as it has now been six months at this level. This means I cannot enter any drug trials. I just hope some trials are successful and I can get treatment once they are proved, if I live that long.
I have the Race for Life in two weeks and not really looking forward to it as my breathing has got worse. Still we are taking a wheelchair just in case I get into difficulties and the girls have said they are happy to push me if necessary. We are having a short break first so I will be as fit as possible for the race. If you are thinking of sponsoring us in the race here is the link:- http://www.raceforlifesponsorme.org/theperfectfriends. (Just copy and paste into your browser.)
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