I was told that I was stable at my last visit to Germany in early May, however my UK surgeon had a chest x-ray taken in early June and says there seems to be a new shadow on my lung.
I looked again at the scan CD the Prof. gave me of my May visit and noticed some shadows, on the full body image, in my peritoneum (abdomen), which he hasn't mentioned. This seems to be new so I have asked the Prof. for his opinion. He says he will look at the x-rays and re-check the scan, but he seems not to answer my question but asks if my Oncologist has planned any treatment.
My Oncologist isn't interested in seeing me while I am seeing the Prof.
I have emailed the Prof. again for his views and to ask what treatment he recommends. I have also left a message on his answer-phone. This is obviously worrying me and my family and we feel we are in limbo until the Prof. gets in contact. . I am due to go to Germany anyway early August, but this is six weeks away.
We had a lovely holiday, which was overshadowed somewhat by our concerns
19th June p.m.
I have now heard from the Prof. who says that the cancer may well have spread and that my lymph nodes are also enlarged, this from his own scan. He suggests I go over to him in July to check to see if the cancer has grown more. He also says it should be tackled with conventional chemo then the local treatment that he does. I will need to see my oncologist too.
I wait for his appointment date and keep my fingers crossed.
Here is a photo we had taken on our holiday last week.
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