Another trip to Germany.

The trip to Germany was very tiring, especially as I only had the chemotherapy the day before. The Prof. says that the bit of mesothelioma he treated is ‘all but stable’, so this is good news. It means the cancer is wounded and will therefore hopefully react more to the continuing chemotherapy. He treated another area this time and says he will do one more treatment too. This is what he said last time we went to see him.

We went to see my little sister on Sunday. I was feeling quite rough but really wanted to see her. I was surprised that she was looking much better than I was expecting. It turns out that she had a calcium build up in her blood that was making her incoherent. It was caused by the bone tumours leeching out the calcium. She had to go into hospital to have it all flushed out from her blood and she feels much better for it. However, it is something that should have been spotted days earlier.

I was completely exhausted yesterday and spent most of the day sleeping on and off. Germany and my sister’s visit took it out of me more than I realised.

I had my blood tests done yesterday to see if they were good enough for me to continue with the second chemo tablet of this second session. I have had the phone call to say I can go ahead and take the chemotherapy, so good news.

I can feel tightness in my chest where the tumours are and hope this is because of damage to the cancer by the chemotherapy drugs. I am also very breathless; this seems to have worsened with the chemotherapy.

I am now over a month into my four to eight month prognosis and hope the treatment is extending this for me. My eGFR seems to be holding out at about twenty four and I hope upon hope that it improves to thirty, as I will then be eligible to enter drug trials and there are a few showing some promise.

Another Meso warrior has just passed peacefully away and I feel for her family who have fought the fight with her. She was very brave and fought right to the end, as I intend to do.

I thank you all for the tremendous support you are giving my family and me.